Now, onto the whole topic of CMV. I'm feeling very aggravated with the state of things... WHY can't doctors see that this is an issue! This is something that can be prevented... but only if parents KNOW ABOUT IT!!!! I miss my baby. Had we known... they ignored the fact that I was sick. I had all of the most common symptoms (mono-like) and they never said anything to me. Am I angry? Yes... still. I'm trying to get better but they are not the ones who heard for months that her baby was going to die. They did not have to stand by and watch as their child developed more problems... they didn't have to go through all the tests and to all the specialists. To them... it isn't real. But to me, and all of the families affected by CMV, it is. It is a daily battle, whether it be doctors appointments and medicine or dealing with the grief of your child's death. We're going to keep fighting for awareness. I don't want any more families to have to do this... to have their child ripped away from them or to have to watch their child struggle. Mommy loves you sweet angel boy. I miss you so much.
Baby brother with his eyes open. Look at that sweet face. He gets transferred Monday to have surgery for his stage 3 brain hemorrhage later this week. Please keep him in your prayers!! Your sissy love you Tyler!!!
Now, onto the whole topic of CMV. I'm feeling very aggravated with the state of things... WHY can't doctors see that this is an issue! This is something that can be prevented... but only if parents KNOW ABOUT IT!!!! I miss my baby. Had we known... they ignored the fact that I was sick. I had all of the most common symptoms (mono-like) and they never said anything to me. Am I angry? Yes... still. I'm trying to get better but they are not the ones who heard for months that her baby was going to die. They did not have to stand by and watch as their child developed more problems... they didn't have to go through all the tests and to all the specialists. To them... it isn't real. But to me, and all of the families affected by CMV, it is. It is a daily battle, whether it be doctors appointments and medicine or dealing with the grief of your child's death. We're going to keep fighting for awareness. I don't want any more families to have to do this... to have their child ripped away from them or to have to watch their child struggle. Mommy loves you sweet angel boy. I miss you so much.
2 Comments
Lynn
1/31/2013 04:05:37 am
Hello. I found your blog on the web just from searching for CMV, andcried my way through your post. I also just lost a baby due to me being infected by CMV during pregnancy and am still struggling with anger over WHY this isnt discussed as something to be worried about! Thinking of you. my email is [email protected] if you ever want to 'talk', vent etc. XOXO Lynn
Kimberly
2/1/2013 12:48:06 pm
I am so very sorry for your loss. I feel the same way and this was my way to try to spread some awareness for ALL of our babies! There is also a facebook page (CMV mommies) and a few groups for parents of angels if you would like to join any of them. My email is [email protected]. Please feel free to let me know if you'd like to talk or tell me about your little one. <3 Thank you for reading. Your comment will be posted after it is approved.
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